Sunday, December 10, 2006

Late Night Ramblings....

Well I'm bored and Dan just left for work, so I thought I'd ramble for a bit...well, not much new to report here in Halifax, I started my new job at the Dept of Health on Friday, seems like it's going to be good and challenging, I was talking to the other Admin there and she said that she was originally hired on as a temp for one month (like me), but the position kept getting extented and she ended up working there 8 months before they hired her on officially. So that's good, I don't necessarily need to get hired on officially, but if I can get my time there extended that would be nice, less worrying about the next job at the end of January.

I still don't know if I should try and get something long term and full time (aka a 'career') since we are moving next year to the Valley, and even that is unclear right now. I'm not sure of when we (well, me) are moving...it's either going to be at the beginning of the summer (not too far away, like 5 months), or at the end, depends on if my friend comes to live with me while Dan is gone to the camps, so who knows...seems to be the motto this year 'who knows', haha. Lots to decide still. Especially next year!

So I went and did all my tests on Tuesday at the IWK with my dad and sister to see if we have Marfan Syndrome or not (for those who don't know, I have some sort of rare eye disease-thing, my left eye is pretty much useless, and my sister and dad both have the same exact thing but only worse, my dad has had 2 or 3 operations already, so they think that we have a genetic disorder called Marfan...just Google it, haha) Anyway, the tests were fine, they didn't do anything too serious, they just measured us and checked our flexibility and things like that...from what I understand there are 'indicators' for Marfan, like on a checklist, and you have to have at least 2 'major indicators' to be diagnosed...we all have one (the eyes), so they were testing us to see if we had another one, but from what they saw on Tuesday, we all just had various 'minor indicators' (flexibility, certain physical traits) but nothing else 'major', so they have to do more tests to see if they can find any other 'major indicators' (these include a swollen aeorta in the heart, skeletal problems, things like that.) So over the next 3 months or so I have to get some X-Rays, do some blood work, have an MRI and an echo-cardiogram...then they will let us know if we have it...I'm pretty certain that we don't, but it's good to know just in case. It will definitely suck if I do have it though, because it's pretty major, and I will be at a greater risk for heart attacks, my eyes could get worse, things like that. I will need to be monitored by a cardiologist every year for the rest of my life.

But the thing that sucked for me even more was that if I do end up having Marfan, I will be considered an 'at risk pregnancy' when I get pregnant and they will have to watch me closely during that time (checking my heart-if it's swollen for example-to make sure there isn't too much strain, ect) They said that lots of people with Marfan go one to have kids safely, but still, it sucks. I'm not worried about the other stuff for when I'm older, I don't care, but this pregnancy thing bugs (and kinda scares) me...so yeah, that's the story for now, I still feel like we don't have it though, we would of known sooner (my dad's symptoms only started in 2000 at age 45) so I'm not going to worry about it too much for now, I'll worry after the tests are done and we know the results...we'll keep you all posted though!

Anyway, I guess that's all for now, time for bed!

(Oh yeah, I put up the Christmas tree today, it's nice, feels more Christmas-ey now...also, we saw 'Apocalypto' last night, it was very good, we both liked it!)

2 comments:

Trevor said...

I was not told that a blog was started...I feel unloved and neglected

Selena said...

Trevor I am just more loved than you are :)